The tide that binds hasn’t always had its place. How souls must be lost in a mesh of forsaken words or unable to turn a page? The backlash of another where it didn’t have its place told tales of a thousand words in oblivious attempts to hinder the suffering of their own souls. A thousand words too many came from a forsaken place or unable to turn a page.
Words warrant to another didn’t have its place. Countless times in the ruins of chaos, the mighty tongue of another sliced at the hearts of others unable to turn a page while it battled to find its place.
Chaos at its best becomes words of many; ten folds too many so to speak. Turning a page with the mass of many becomes the ultimate destruction that turns tides into withered storms. The backlash of a storm at its best becomes a category 5; a chaotic rumpus turns nights into days. How do words that carry no merit among tides wither away to a forsaken place?
The backlash of ten folds continues on while the tide binds in a chaotic mesh. Back and forth the words of haste continue barreling down at another. Over and over words began to stumble over one another. Fumble back and forth; stamping on everything in its path.
Rampage carries on, cursing back and forth to any forsaken ear that would quiet ones mind. Mass destruction at its best will cycle any which way it can go. Chaos at its best will continue slamming a book shut and unable to turn a page.
A fierce haste in the eyes of another is damaging at its best. Pacing back and forth, slamming doors till ears burst!! Foul a mood with their vigilante ways, slam a book shut; slam a door any which way it will go. The fury blood of another condemns hatred of another.
How long must rage carry on till the voice of another is truly heard? The sorrows of a poor soul withers away with haste may condemn their own soul. Falling silent behind every door slammed; slamming a book shut or tears a page. Souls that are damned in a fiery rage cannot soothe their own souls. One can slam a thousand doors or burn a book to prevent it from turning a page and still not be heard from the racing mind within.
The mind of a chaotic rumpus is a silent destruction and unable to voice its troubled soul or turn a page. A mind that races with time unable to neither slow itself down, nor can it quiet itself till the soul truly understands itself.
The rage; those cycles may be repetitive at its best, turning a page may have falling still at its best. The rage within while slamming doors cannot be heard. One can slam ten thousand doors and still not be heard. Walk a plank or pace back and forth only to ravage the tide at its best. Throw a thousand loose pages from a book into the tide that binds and still fall silent, unable to be heard.
The chaotic ruins within can only reflect from the view of one’s own eyes. The heart falls silent from emotions stirring up inside.
Copyright © 2014 by Marsha Beede
The OCD In Me
Reassurance Serenity Prayer
God grant me the ability to surrender my uncertainties and all forms of reassurance for my OCD intrusive thoughts, that I may know this will most certainly without doubts make me uncomfortable, however perhaps I may understand that I remain powerless, that this too will be a given.
And so it shall be…
Shatter Proof : “Meth versus Gremlin”
(Music written and composed by my son with the use of therapeutic arts)
“What it takes to shatter stigmas and reshape modernized thinking”
I’ve found many challenges in my life when asked to elaborate on unmasking “Meth” and the disorder in the brain of my AS (Refers to Addict Son in Supportive Networks) to be complexed. To explain how my AS (whom is an adult now) functions without labeling him with a stigma, the severity of it still troubles my heart to this day.
For one to understand the person with addictions, we must shatter proof illusions and become unglued. Like a web of false notions, unmask the illusions of defining what makes a person go to such great lengths is the question one must ask themselves. How we unmask the addictions as to why one may become self-destructive with potentially life altering behaviors and possibly death resulting from self-destruction requires absolution, breaking down the stigmas.
Family dynamics; living with a loved ones addictions.
Meth, my AS preference of drug addiction is a powerful source of evil within the potent chemicals and poisons that produces havoc in society. All it takes is 1 or 2 hits of meth and the person may fall deep into what may appear to be a never-ending battle from this drug addiction. Sadly most addictions to drugs will prey on anything to attain and continue to use at great lengths to get this fixed “high” to mask what might otherwise be overwhelming emotions; the inability to see change and causes a person to spiral downward.
The capacity of what a person will do to feed into ones addiction becomes difficult to comprehend at times; beyond what might otherwise be self-destructive. A person addiction mode can falter and drift subconsciously, yet oblivious state of the reality in which present moments become a way to create their next escape, to run perhaps from themselves.
On the run; the road to chaos
Changes within family dynamics didn’t happen overnight as this continues to be ongoing circumstances in our lives. However, time and patience are virtues of all things. A healing process for many can take a toll on family and love ones. Sometimes spending decades searching for solace, surrender to much-needed peace to move forward in life.
My AS has been a runner most of his life. Running from himself in fight or flight modes from a very young age prior to adolescence. He’s emotions to this day are very troublesome within the reality of his state of self-destructive behaviors and actions. I came to realize that on many occasions that trying to describe my son’s addiction created a lot of emotions and turmoil. The terror within the addiction was simply not going to make what I had to say any easier to describe how horrific this addiction had become.
My tolerance level was certainly tested on many occasions. The paranoia created from years of meth use had began to test my love and loyalty in ways that were difficult. My reactions to what my son was looking for were through his turmoil and his suicide gestures, his threats when he would become overwhelmed? He would send me on a mission long enough to get a location to dial 911. Only to find out that he was not where he stated, but rather he would test me to see what my response would be. He knew from past experiences that my reaction would prompt me to dial 911. These test often would resolve by what he simply may have wanted (a ride, money, food or items) or to know that I still loved him and cared about his well-being.
Enabling in crisis modes
A crisis can condition a person to stray far from stabilization in any manner within cause and effect, creating an avalanche effect that may continue to build regardless. Many individuals at one time or another have come across circumstances in their lives that sent them on a mission in an overwhelming emotional state. This doesn’t necessarily change or modify another person’s elevated emotional state of mind, but rather dysfunction may occur.
One may at times mimic or draw conclusions to reflect on their own emotional response conditioned through a belief system right down to personal and core values. One may find within their own personal habitat that their own state of mind may react spontaneously when in a state of panic (rescue mode) to rid unwanted emotions or problem solve.
We sometimes become compelled in stressful situations to place ourselves in the driver’s seat of a vehicle. Only to learn that when one is in overdrive with their foot floored to the gas pedal that one may be based in a state of emotions to React! Respond! Do Something!
Retrospective; putting the brakes on enabling
I learned long ago that I couldn’t give him cash or items worth much because it would already be gone towards his addiction. I cannot stress enough how enabling intends to feed more consequences that simply are not helpful, but rather it creates a never-ending cycle. Making the decision not to enable is much easier said than done. The pain which is felt can consume a person’s thoughts and emotions when it is our loved ones whom must face these circumstances and render their own decisions to understand their addictions.
[Addiction is not a task easily understood by the addict themselves because addictions do not shed lightly when rages appear without warning and the aggression that soon follows the accusations made against the addict.]
Meth Versus Gremlin
I was beginning to have difficulties understanding how to separate whom my son had become. It had become difficult to describe the meth addiction without associating my son’s name to the addiction itself. As I was talking to someone regarding addictions to meth the word “Gremlin” appeared. This person described meth and the many behaviors and emotions as a compromising comparison to the word “Gremlin.” One where I could separate “Meth and Son” as two very different individuals. When his gremlins appeared we were able to define his addiction. When my son was sober, we could relate to the kind, gentle and compassion that came with his demeanor as genuine love for others.
(Captured moment in city papers. His love for skateboarding)
Long before the “Gremlins” arrived was a very loving young man. He valued his family more than life himself but struggled with severe depression and an anxiety disorder. His depression kept him home in bed most days when he should have been in school. On more pleasant days he spent time doing things he loved. I often encouraged positive interaction to do things he loved as a way to build on memento’s. This would include his love for music. He could spend hours at home writing and composing his own music. I always encouraged him to follow his passions.
The road to recovery
Long ago my son had been a victim of horrific assault at a very young age. We all know these things happen, but when these things hit close to home it becomes most complex and agonizing with many days of tears and sadness. No parent can acknowledge these circumstances without some sort of emotional breakdown. To this day I still feel the pain he suffered, asking myself sometimes filled with anger and/or sadness “who does these things to children?” There are some days where the memories of my sons sadness, pain, and suffering to live in this world still hit me without any warning and I begin to have emotional reactions of anger, sadness and despair. But I had to learn to sit with my emotions and allow them to pass. My sons perpetrator passed away before justice could catch up to him. He can now face justice with the man above.
I had to come to a point in my life when I found out my son began using drugs at a very young age. This was going to become an uphill battle because the anger and hatred had already began to appear masked within his deep depression. Mental health factored so much into our lives to the point we were all in therapy trying to recover from chaos that appeared to follow us everywhere we went. Our family became quiet dysfunctional I’d say to the least.
Throughout the years my son continued to struggle and was placed in several mental health treatment facilities. When I learned the severity of his addiction I placed him into “Dual Diagnoses” programs for mental health and chemical dependency. He entered several treatment facilities throughout the years, inpatient, outpatient and lastly, a long-term treatment facility. It never seized to amaze me how hard he fought to come home. He ran from every inpatient treatment facility and was kicked out of each single one. He couldn’t manage his emotions in treatment because he wanted to come home no matter the consequences he would face from the county and juvenile justice department.
He was truly miserable, but our final last effort and hope was his approval to a longer term inpatient treatment facility. I was absolutely grateful he had been approved because my concerns for him grew quiet fearful for his future. He proved to be relentless with his efforts and determined to run away over-and-over to make it home. It didn’t matter if he walked home for miles on freeways or in the middle of the night jeopardizing his safety. I’d hear him throwing sticks and rocks at my window, pleading for me to let him in. The following morning, I would drive him back to the treatment facility.
However the severity on his condition was troublesome by many facilitator in his long-term treatment program. The day came when I was summoned to attend a meeting at the treatment center only to be told that I needed to take my son home because they labeled him a “Liability.”
The irony still burns through me to this day that children/teens have the ability to contest and/or given a choice to whether would like to attend or engage in treatment options, allowing them to make adult decisions on their behalf when they are unable to engage in healthy decisions. There is no doubt other than to believe that the system is somewhat broken and bias. Whereas, I can acknowledge that punitive and cruel punishment from the justice department to utilize incarceration as a tool towards their war on drugs. These laws have various loopholes that waste a lot of tax dollars.
These notions carry very little merit as incarceration does more harm than good when it comes to lack of initiative towards positive reinforcement and education on an alarming rate of substance abuse crimes. It certainly hasn’t proven to be a solution, one that backs up with statistics as an overall solution to humanity. A solution would be to define to a certain extent that many substance abuse crimes went awol because the justice department didn’t carry much understanding when it came to the substance disorder in the brain versus the crime that brought them to such extreme measures in the first place.
Traditional methods of recovery programs simply will not suffice. Times have changed and we need to acknowledge and learn new ways to think outside the box.
The pain and sadness seem at times to never fade other than the occasional calm in-between emotional storms from the resentments and anger that have shattered all around us to this day. But we continue to move forward and make progress towards understanding each other with willingness to be open-minded. Addictions and mental health are very real circumstance. They do not stagger far from the reality of one’s situation but rather life has fiery closes to one’s heart whom suffers. It is the fiery within itself that appears when mental health and/or addictions go unnoticed and/or untreated..
Finding spirituality carries complexity for many with addictions. When someone is struggling to find reasons to believe things will get better. Most often a person’s addictions can spiral into a path of destruction, leaving one’s self-worth, personal core values to plummet downward. One’s spirituality may have already been hindered collectively through emotional duress without the ability to reason and/or see things differently. For some spirituality may falter so far that even an avalanche couldn’t persuade one to find shelter.
[It is often said when it comes to addictions, mental illness, one may strive at a bare minimal in times of struggles. One’s ability to maintain a faction of hope strays far, just enough to keep a person on solid ground; living moment-by-moment in any given circumstances where there are shadows of doubts…]
While building friendships thoughout life it was relations with seniors I relished most. We greeted each other in senior centers, we greeted in memory centers, many whom suffered with Alzheimer’s and/or Dementia. To this day it was an honor I came to embrace in those whom I served, those moments shared regardless of their memories at free will or fragments of what perhaps was. I am grateful to have met, I will always treasure those moments. Regardless of each persons circumstances, it was time well spent…
Alzheimer’s and Dementia Activities
As an activities coordinator I had first had experience working closely with those whom had Alzheimer’s and/or Dementia. The one notable thing I’ve come across that is sometimes misunderstood is the potential of those whom had Alzheimer’s and/or Dementia. There are various stages of Alzheimer’s and Dementia but many still have potential to engage in meaningful experiences.
A person with Alzheimer’s may begin to show considerable symptoms of decrease brain functions but underneath the surface of those symptoms one may be surprised with capabilities of what cannot be seen beyond those symptoms. However before I begin to share my experiences on things we can do to maximize quality of life; a life worth living, I’m going to provide a bit of background on Alzheimer’s and Dementia referenced and quoted by National Institute of Aging.
The National Institute of Aging
What is Alzheimer’s?
Scientists continue to unravel the complex brain changes involved in the onset and progression of Alzheimer’s disease. It seems likely that damage to the brain starts a decade or more before memory and other cognitive problems become evident. During this preclinical stage of Alzheimer’s disease, people seem to be symptom-free, but toxic changes are taking place in the brain. Abnormal deposits of proteins form amyloid plaques and tau tangles throughout the brain, and once-healthy neurons stop functioning, lose connections with other neurons, and die.
The damage initially appears to take place in the hippocampus, the part of the brain essential in forming memories. As more neurons die, additional parts of the brain are affected. By the final stage of Alzheimer’s, damage is widespread, and brain tissue has shrunk significantly.
To learn more about Alzheimer’s follow link provided by
The National Institute of Aging
What is Dementia?
Dementia is the loss of cognitive functioning—thinking, remembering, and reasoning—and behavioral abilities to such an extent that it interferes with a person’s daily life and activities. Dementia ranges in severity from the mildest stage, when it is just beginning to affect a person’s functioning, to the most severe stage, when the person must depend completely on others for basic activities of daily living.
The causes of dementia can vary, depending on the types of brain changes that may be taking place. Other dementias include Lewy body dementia, frontotemporal disorders, and vascular dementia. It is common for people to have mixed dementia—a combination of two or more disorders, at least one of which is dementia. For example, some people have both Alzheimer’s disease and vascular dementia.
Other conditions that may cause memory loss or dementia include:
- medication side effects
- chronic alcoholism
- tumors or infections in the brain
- blood clots in the brain
- vitamin B12 deficiency
- some thyroid, kidney, or liver disorders
- Parkinson’s disease
- Sleep disturbances
Some of these conditions may be treatable and possibly reversible. They can be serious and should be treated by a doctor as soon as possible.
Emotional problems, such as stress, anxiety, or depression, can make a person more forgetful and can be mistaken for dementia. For instance, someone who has recently retired or who is coping with the death of a spouse may feel sad, lonely, worried, or bored. Trying to deal with these life changes leaves some people confused or forgetful. The emotional problems can be eased by supportive friends and family, but if these feelings last for a long time, it is important to get help from a doctor or counselor.
The National Institute of Aging is very resourceful if one would like to learn more.
Before I begin I would like to share a tremendous and positive experience I had working in a memory center with seniors whom had Dementia and/or Alzheimer’s. It was my first day as an activities coordinator at this particular memory center (due to confidentiality I cannot disclose information that pertains to clientele).
My trainer and I gather clients whom would appreciate participating in an activity. Many clients were in various stages of Alzheimer’s and/Dementia of being ambulatory, walkers, wheelchairs, etc…
Many were in various stages of Alzheimer’s and Dementia with memory function, forgetfulness, lethargy, unspoken words…
Some were perhaps, irritable, angry, sacred from the unknown or confusion of where they were…
One thing for sure is everyone needed a sense of belonging regardless of circumstances…
But kindness, compassion and understanding can go a long ways to make the best of circumstances (key word validation)
My trainer and I gathered as many clients as possible at a very large table (I am a big fan of community activities and I will describe in more detain soon) to fits as many clients as possible. We then went to the storage area and grabbed balloons and a water noodle made as floats while swimming. We had the noodles broken in half for this game and called it noodle ball. The estimated amount of clients that participated was roughly 15 and if there was one thing I could assure my readers is everyone participated on their own free will.
We gave everyone a noodle and placed a balloon in the center of the table regardless of where their brain or thoughts may have been. Some perhaps may have been laying dormant. Everyone participated and the many smiles that filled the room to have such a wonderful, somewhat physical activity to play. Those noodles were skillfully used and tailored to each person capabilities of what they could achieve when that balloon came their direction. Surely everyone one had their eye on the prize and this was the balloon. The desire to have this prize come their direction was remarkable and by no means did anyone engage in this game with any other intentions. At times when things became overjoyed to capture the prize we would place a second balloon on the table to bring more joy. I was quite amazed with dexterity because everyone had their own unique challenges to overcome. My thought perhaps lead me to believe that many may have enjoyed volleyball or some sort of sport one time or another. This would include those whom may have laid dormant but they were able to unlock their brain to participate even if it may have been subtle moments. This was a favorite activities among clients and on many occasions they requested to play a bit longer. It was a great distraction from everyday environment, background noise and everyday stressors being away from home.
Unlocking the brain with social interactive activities
I will reference the word “unlocking the brain” as I continue describing potential and meaningful outcomes to engage people whom suffer from Alzheimer’s or Dementia. There as various things we as caregivers can do to try to minimize moments when patterns of the brains disrupt ones ability to get unstuck. By no means can I say suggestions will benefit all situations but maybe more so to minimize behavior changes that may become overwhelming at times. These suggestions will include things that may help caregivers or family member in a home environment too.
1. Background noise can become an undesirable and overwhelming experience for those whom struggle with Dementia or Alzheimer’s. At times this will factor into irritability, frustration and anger.
But if the background noise is desirable such as something they can relate to or enjoy than this is more than likely a positive interaction.
2. Friendships doesn’t need recognition.
In memory centers or day centers I’ve come to recognize some key elements where friendship doesn’t necessarily require one to know another person but rather a substance in fragments. This implies that a loved one may build a friendship without knowing a person’s name nor carry much recognition. But will sit or do activities with a someone based solely on comfort in fragments; partial recognition.
This is crucial for caregivers to be mindful in maintaining these kinds of friendship. Apply this knowledge to everyday use. At times this will fall on the caregiver to help guide an individual to this comfort zone.
3. I’m a fan of community integration and social settings. Sharing a community experience versus small group settings leads to more opportunities to engage as a whole. Often times smaller settings lead to gaps, in return lead to boredom, reminiscing, agitation and loneliness.
It’s been my experience that even if one was at a community center engaging with others it would give them this sense of belonging. Clients with Alzheimer’s and Dementia sometimes benefit from community settings regardless of circumstances. To come together with a sense of acknowledgement and not feel so detached with overwhelming emotions.
It’s a great way for caregivers to see things from a different perspective, to get to know a clients where at times things go unnoticed. Some traits are habitual through body language, cues and gestures. Great friendships are built when we take notice and apply this knowledge to use. Be the person that inspires this method and apply it to daily use.
4. It’s been notable that engaging in activities through past time favorite are preferable. Music would be a great example. Utilize music, movies, or topics in past tense. Current events can be overwhelming at times, especially music. It is crucial for caregivers to remember that clients may not be enjoying the same music or movies. Find what motivates the client interest.
5. I mentioned the use of brain lock earlier. This is implied to be used as an opposite action in thoughts or actions in a way that engages ones attention to unlock things that may keep person stuck.
Many times I used this method towards community engagement to create the most unlikely response to a question on game cards I created for this purpose. These questions are somewhat off the wall but very relevant questions we seldom think about.
As a community coming together we sit with the utmost respect, providing refreshments, snacks and plenty to talk about. Providing an environment with concierge service brings an open invitation to engage with others. This provides the opportunity to further social interaction with others. The cards with random questions became a favorite among clients. Each person has the opportunity to answer every question provided.
After all, how often would a person ask “if you were walking to a friend’s house and it started to rain, what would you do?” The primary objective to random questions is to unlocking patterns that keep a person stuck. Perhaps the question may have been “what if you just came from the grocery store and there’s a stray dog at your door begging for food?” The question remains “if you were in a car going out-of-town and there’s a cow standing in the road?” Ultimately the question leads to “What would you do?”
Key element was to give everyone a chance to respond. Clients maintained social interaction for longer periods of time, found friendships among each other, less isolation and better quality of life…
6. When it comes to Alzheimer’s and Dementia things will be repetitive in nature; by nature, it’s a given.
Expect the unexpected, most importantly there is no cure for Alzheimer’s and Dementia. Carry a non-judgmental stance, compassion goes a long ways; time and patience are virtues of all things.